Monday, June 22, 2009

It's been too long

Wow, I've certainly neglected this blog. It wasn't my intention, but you know how life can be. You get so caught up that you forget the little things.

Life has been eventful in the last couple months, I'm not sure where to start..

The milk free diet has been going well. It's still in the infancy stage in terms of finding foods that not only he will eat, but that are dairy free too. Sometimes, when planning meals for the week, we forget to check our normal menus to make sure they are dairy free or can be prepared dairy free. We have not found a milk substitute that he will drink at meals. He will not drink soy, almond, or rice milk, that's any flavor. He will drink his EO-28 Splash so that is helping him with calcium and vitamin D. Wes has had a follow up with the gastro this past week and he was surprised and very pleased that the diet has worked so well with his constipation. We are pleased as well.

Wes' behavior has not gotten any better in the last few months either. It's progressively gotten worse. He can no longer tolerate any changes, even those he's been prepared for. Transitions are, once again, very difficult for him. We've gone back to PECS all the time as well as reinforcers to help him get over the rough times. The school consultant also recommended buying the handheld version of the V-Smile that he can work towards when we're out and about and he's having a hard time. So far, it's working, but we still have issues.

Casey has been following in his older brothers footsteps. His behavior has been pretty bad lately too. I know he's just trying to get attention because we've been so focused on Wes' behavior and correcting that. I set aside some time during the week for just he and I to do special things. We go to the library to read books, visit a park we don't normally go to, and have special treats. He will be starting preschool in the fall as well, so that should help a lot. He really loves to play with other kids and we don't go on playdates because they are just too difficult.

Wes will be starting his summer program next week and I've included a playgroup two days a week for him. It's a social skills playgroup. They are ABA trained and will include mainstreamed kids. He's on the cusp of wanting to join in with other kids. He just needs to learn the skills to get him over that first hurdle.

For the moment, that's all.


Casdok said...

Great to hear the diet is working Wes but sorry to hear about his behaviour. With the 2 of them you have your hands full!
Hope the summer program goes well.

Alicia said...

Glad you posted an update! I know how easy it is to neglect the blogs, lol. Glad to hear the diet is working well! Sorry to hear about the behavior issues but hopefully they will smooth out soon. Your boys are so lucky to have you as their Mommy! I hope you get some R&R in at some point too!

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